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The Story Before the Bathroom Reveal

Y'all, it has been a ride. Why are all of our renos involving trades always held up?  Now I could understand the kitchen reno which began March 16, 2020 which is the week all hell broke loose.  The kitchen wasn't finished until July that year and it really had nothing to do with the pandemic.  There were quality control issues with two doors and if you think I was settling for lint sealed under clear coat and the same two holes caused by an industrial stapler on three remakes of a door, you're nuts.  We actually redid our bathroom in 2022.  Do you remember?  Probably not because I hated it so much I never did a reveal!  The deep ocean blue was a pain in my ample ass and for almost three years because it never stopped running.  We had white chair railing and water from drying our hands or showers constantly dripped blue and would pool on top of the white railing sending me into fits on the daily.  Because we'd gone through three different blue...

Hump Day Poll: What Do We Need to Ask




Okay, so we're bracing up for the beginning of yet another cancer journey.  We're talking late stage.

Anyone who has been through it or gone on the journey with others, what do we need to make sure we ask?  

The big ones I can think of are 1) what is the goal of the treatment they are selecting  2) will she be tested for immunotherapy  3) are clinical trials an option and at what point do we decide that needs to be pursued?

If you can think of anything else that specifically needs to be asked of late stage on the first appointment, please let me know.  Also any tips/tricks for dealing with a "healthcare" system that has zero interest in getting patients/families information in a timely manner.

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Comments

  1. I'm so sorry.
    What can we expect with this treatment?
    If this was your Mom/wife/family member how would you proceed?

    As far as test results, get her login details for her health portal.
    If you need to communicate status frequently to many people look at caring bridge website instead of being on the phone always repeating yourself.
    Xo

    ReplyDelete
  2. Thanks to anyone who can share. It is unfortunate that any of us should ever know these things but not there yet.

    ReplyDelete

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