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Family Time Weekend Recap

Happy Monday all!  I hope y'all aren't melting in the heat because it is MISERABLE!  Today we are going to apparently break records from the heat and be at 100 with heat index way higher.  Yay.  This will be me for the next week: source We went to my second cousin's graduation party.  I purposely wanted to arrive about 45 minutes later than the start time.  You don't want to get wrangled into setting up, babysitting, etc and that happened to people arriving earlier from what I heard so smart call on my part.  Also everyone is always chit chatting and we knew if there would be food it would be about the time they'd be eating...right again.  We already ate so we were good to go and then shocked the sh*t out my family when we walked in.  Final goal:  ✔ The grad immediately popped up and came over to hug us and be a good hostess which was so cute.  She's always been a very sweet kid but also a little badass.  She was the only wrest...
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Hump Day Poll: What Do We Need to Ask




Okay, so we're bracing up for the beginning of yet another cancer journey.  We're talking late stage.

Anyone who has been through it or gone on the journey with others, what do we need to make sure we ask?  

The big ones I can think of are 1) what is the goal of the treatment they are selecting  2) will she be tested for immunotherapy  3) are clinical trials an option and at what point do we decide that needs to be pursued?

If you can think of anything else that specifically needs to be asked of late stage on the first appointment, please let me know.  Also any tips/tricks for dealing with a "healthcare" system that has zero interest in getting patients/families information in a timely manner.

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Comments

  1. DawnJuly 12, 2023 at 7:34 AM

    I'm so sorry.
    What can we expect with this treatment?
    If this was your Mom/wife/family member how would you proceed?

    As far as test results, get her login details for her health portal.
    If you need to communicate status frequently to many people look at caring bridge website instead of being on the phone always repeating yourself.
    Xo

    ReplyDelete
  2. The Mr.July 12, 2023 at 9:02 AM

    Thanks to anyone who can share. It is unfortunate that any of us should ever know these things but not there yet.

    ReplyDelete

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