Okay, so we're bracing up for the beginning of yet another cancer journey. We're talking late stage.
Anyone who has been through it or gone on the journey with others, what do we need to make sure we ask?
The big ones I can think of are 1) what is the goal of the treatment they are selecting 2) will she be tested for immunotherapy 3) are clinical trials an option and at what point do we decide that needs to be pursued?
If you can think of anything else that specifically needs to be asked of late stage on the first appointment, please let me know. Also any tips/tricks for dealing with a "healthcare" system that has zero interest in getting patients/families information in a timely manner.
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I'm so sorry.
ReplyDeleteWhat can we expect with this treatment?
If this was your Mom/wife/family member how would you proceed?
As far as test results, get her login details for her health portal.
If you need to communicate status frequently to many people look at caring bridge website instead of being on the phone always repeating yourself.
Xo
Thanks to anyone who can share. It is unfortunate that any of us should ever know these things but not there yet.
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