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What I'm Reading This Week #13

Friday is finally here!  Can I get a woot woot?!  (Cheers to those who actually did it.)  The week felt long to start but then before we knew it...blam!  Friday.  We had the countertop dude out to measure and template Tuesday.  The lady who made the appointment said it would be 2-3 weeks after so I'm hoping for sooner than later so I can FINALLY reveal the bathroom to you guys!  Kind of stinks though because we were told they would take the sink/faucet with them and that was a big fat no.  We were looking forward to getting that big azz box out of the house.  Soon enough I guess.   You may have noticed a little zhuzh to the site (probably more for those on laptops) but I figured it was time and I think they retired my previous theme anyway.  So it's a little minimalistic but there wasn't a ton to choose from on the free side so I took what I could get.  Enjoy. šŸ˜„ I sat down and did a spreadsheet of my seeds, when they were...
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Hump Day Poll: What Do We Need to Ask




Okay, so we're bracing up for the beginning of yet another cancer journey.  We're talking late stage.

Anyone who has been through it or gone on the journey with others, what do we need to make sure we ask?  

The big ones I can think of are 1) what is the goal of the treatment they are selecting  2) will she be tested for immunotherapy  3) are clinical trials an option and at what point do we decide that needs to be pursued?

If you can think of anything else that specifically needs to be asked of late stage on the first appointment, please let me know.  Also any tips/tricks for dealing with a "healthcare" system that has zero interest in getting patients/families information in a timely manner.

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Comments

  1. DawnJuly 12, 2023 at 7:34ā€ÆAM

    I'm so sorry.
    What can we expect with this treatment?
    If this was your Mom/wife/family member how would you proceed?

    As far as test results, get her login details for her health portal.
    If you need to communicate status frequently to many people look at caring bridge website instead of being on the phone always repeating yourself.
    Xo

    ReplyDelete
  2. The Mr.July 12, 2023 at 9:02ā€ÆAM

    Thanks to anyone who can share. It is unfortunate that any of us should ever know these things but not there yet.

    ReplyDelete

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